SIDE EFFECTS FOR THIS DAY: headaches (pain rating 3); left groin pain (pain rating 6); lower back pain (4); side pain (5); fleeting, needle-like pain in shins; exhaustion; lack of focus; hot flashes/night sweats; problems with sleep.
I am very forgetful today. For two hours, I could not think of my nephew's name. Today was early-ish day in any case and I am generally fuzzy/tired on those days, but this was worse. And I am having a hard time finding a position to sleep in comfortably again.
Wednesday would be my third shot. But I am not going down that road any more. Now I'll be writing about cycling off, which i hope won't be quite so bad.
I've been on the 3 month Lupron Depot shot since March 14th of this year! I had headaches the first month - which worsened if I lay down. This month it is phenomenally tired. Each month I go through a week or two where I am a complete space cadet.
ReplyDeleteThough - all in all, some random hot flashes and headaches aside, this is so much better than the several months of nightmare cycles before it. I have Adenomyosis - basically endometriosis that has invaded the uterine muscle wall. My next step is hysterectomy - most likely this fall.
I wish you the best. I'm glad I stumbled across your blog - it's nice to know I wasn't just losing my brain cells incident to age! :0)
Julia, how quickly did your adenomyosis symtoms subside? You and I are on roughly the same schedule. They suspect that I might have adenomysosis in addition to the endo, but none of my symptoms went away. Thanks for posting! It helps me to know I'm not going crazy either. :-)
ReplyDeleteYou can email me too at lupron.journal@gmail.com
I'm sorry you've had such a difficult time on the Lupron. I just had my fourth shot last week. I, too, experienced bad headaches, hot flashes and really disruptive sleep because of the hot flashes. But I do believe all of the side effects have gotten better and my body has gotten used to things. To me, it happened shortly after the third shot.
ReplyDeleteI had surgery right before New Years to remove a large cyst from my left ovary. My ovary had collapsed and I had "a frozen pelvis" because the cyst/ovary was attached to my intestines. The surgery required them to remove part of my ovary. The endo was so bad that they couldn't get it all, so I was told to do the Lupron. I chickened out at first because I'd read so many bad things, but then I decided I had to try and I had to be committed to sticking it out.
Before my surgery, when my symptoms were at their worst and I was dealing with the cyst, I'd lost about 15 pounds (I weighed about 98 pounds). I slowly have gotten better and I credit much of it to the Lupron. But I wasn't certain until about month three on the shot.
I, too, have felt very forgetful and a bit "out of it," but my overall health improvements were worth it and by feeling better, everything else seemed better and I felt more with it.
My doc told me when I started that I would need to stick it out. I'm glad I have. I wish you health and doing what's right for you. My only "two cents" would be that if you feel like you've felt any improvement, stick with it a little longer. You may be at the "breaking point" and things may start to improve.