SIDE EFFECTS FOR THIS DAY: headaches (pain rating 2); left groin pain (pain rating 4); pain on left side (2); left knee pain (pain rating 3); left leg pain (pain rating 3); general lower back pain (4); extreme fatigue; heart palpitations/racing; chest pain; pain in lungs; lower ab muscles weak; white noise in ears; prickly pain - like a random stabbing with needles in the feet and legs; red, itchy rash on left arm, abdomen, nose, chest, right ring finger; hot flashes/night sweats.
This is short and sweet tonight. Not much changed since yesterday other than I continue to be exhausted, more so today. My mood is better, but I can hardly keep my eyes open.
I called ScriptAssist today to discuss my side effects. This is an independent Rx service here in the US that you can call to ask questions, etc. The medical professional with whom I spoke said, given my history, she never would have expected my side effects to be so severe. Nor could she advise me as to whether or not the side effects would abate or continue. She said that less than five percent of patients have the range of side effects that I am having. Lucky me.
I made an appointment to see my surgical OBGYN tomorrow to know whether or not I should continue this treatment. Because the drug has to be shipped and my next shot is scheduled for April 15, I have to give Pharmacy Solutions a lead time. I'll let you know.
The rash continues and is more broken on my chest today. It also is very irritated and actively itches. Nothing seems to make a dent.
I am so tired today, beyond the exhausted I have known so far. No words can describe just how tired I am. I also realized since beginning this drug, I've lost seven pounds. This I want to be careful of because I'm petite anyway. I have not been eating much lately, admittedly. I'm just too tired.
Thanks everyone for writing and for your support.
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1 comment:
I know how you feel being the "lucky" few that cannot tolerate some drugs...I'm like that with Reglan and Morphine-the 1-2% that have the weird side effects. It's not fun times. I haven't been on this long enough to see what it shall bring.
I hope that you have a good conversation with your OBGYN. The side effects sound terrible. I'm in clinical/medical research, and it's always aboutbenefit versus risk. Sucks that we can't get real answers-only the hypothetical. I pray that you will come to a decision that you can be both at peace with, and, at physical ease!!! Good luck, and I'll be thinking about you!
Are you taking add back? Would that help with some of the symptoms? I dunno these things-just was curious.
HUGS!
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